I’m tired of pretending that I’m okay. I fake it in front of family and friends. I don’t want people to get upset and that’s totally on me. I guess I’m a people-pleaser after all. I mean, what can happen if they know? I just think that it might be worse if I keep hiding it from them. Then there’s the fact that I am having a hard time facing new diagnoses and symptoms. There’s no one to talk to about this either. I suppose a counselor may be in order.
Having CRPS is one thing, but I’ve been diagnosed with several rare diseases and now have a plethora of other “minor” diseases like fibromyalgia, diabetes, and kidney disease. I was just diagnosed with Dysautonomia and Lymphedema, so that sucks. My life expectancy just took a nose dive and no one understands.
It’s also getting dangerous to go places on my own. Dangerous because I can get hurt if I fall, which I do often and I certainly can’t depend on the kindness of strangers to help me. I’ve broken bones in both feet at the same time, twice, yes, twice. The last time I broke my CRPS leg too.
How do I make this transition from playing fine to letting people really know what’s going on?
CRPS Inside Out 
You just have to be blunt and honest. I used to have the same struggle with my RSD/CRPS. It was tiring to pretend all day every day. While it may seem brash, you just have to tell people. I’ve found that people are receptive and they understand and if they don’t, I now educate them. I hope you can find a way to be you. Don’t let CRPS define you, but certainly don’t let it be a silent partner either.
LikeLiked by 1 person